26 March 2021

 

     I went to UW for the third time in four days.  I received IV immunotherapy, obinutuzumab, and IT chemotherapy, cytarabine.  Everything went okay, and the peanut butter and jelly sandwiches were just as dried out as usual.  Think a pumice stone for exfoliation.

     I learned from Amy, the nurse practitioner who did my IT chemotherapy, that I am scheduled to move forward on the CAR T-cell therapy, with or without cancer in my CNS.

     I might see 2022, and the possibility of another drug or treatment to come online to keep me alive a little later once I relapse from the CAR T-cell therapy. 

     That is what has been happening since July of 2020.

     I felt terrible yesterday but took a large cocktail of drugs last night which helped.  I was tired as all get out, then seemed to catch a second wind and struggled to fall asleep.

     The skin issue seems to be turning the corner.  It would be nice to not awaken at night because I itch so much.