I went outside and did a good 5k, then did a little walking and talking with Paul and David Tarlo.
I have been on zanubrutinib over a month now. The tumors have shrunk, but they atrophied to a point and stopped. It does not appear I will achieve full response.
Joe Heck has allowed me to use his petition for release as a guide for mine. My big problem at this point is Dr. Pophali's unwillingness to go beyond, "it's hard to say" when I inquire about life expectancy.
I have been dealing with more than typical fatigue the last week plus. I hope it is only a side effect of the zanubrutinib and not disease progression. Otherwise, beyond body sores, I feel fantastic. Especially considering I have stage IV cancer. And as my friend and late fellow cancer patient Joe Johnson liked to say, "There is no stage V."
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